John Wiley & Sons Health Research Practices in a Digital Context Cover The current "generalized digitization" of society is influencing the health environment, healthcare .. Product #: 978-1-78630-438-4 Regular price: $144.86 $144.86 In Stock

Health Research Practices in a Digital Context

Morillon, Laurent (Editor)


1. Edition November 2020
208 Pages, Hardcover
Wiley & Sons Ltd

ISBN: 978-1-78630-438-4
John Wiley & Sons

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The current "generalized digitization" of society is influencing the health environment, healthcare organizations as well as actors. In this context, human and social sciences deconstruct, nuance and sometimes even challenge certain preconceived ideas and/or dominant discourses. In this book, researchers of four nationalities and three different disciplines have agreed to open the "black box" of their work. They display their scientific practices from the perspective of epistemology, ethics and methodology. They present and analyze their values and postulates but, also, what may have influenced the project, the definition of the object and objectives, as well as their approaches. In a contextual way, the first part presents some changes in environments and infocommunicational practices related to digital health. The second part opens space to reflect on ethics and deontology. Finally, postulating that scientific fact is not an essence but the result of a process, the last part discusses the methods implemented, which may be different from those initially envisaged. This book is dedicated to the researchers and postgraduate students in the human and social sciences as well as the health practitioners likely to collaborate with them.

Foreword xi

Introduction xiii

Part 1. Changes in Contexts and Info-communication Practices Related to the Digital Environment in the Health Field 1

Chapter 1. Health and Digital Technology: Reflexive Feedback on Some Works 3

1.1. Introduction 3

1.2. Voluntary changes over the last 50 years 4

1.2.1. An old but partial political desire 5

1.2.2. Coexistence of two types of information: medical and health information 7

1.3. Significant issues 9

1.3.1. Economic and professional issues 9

1.3.2. A plethora of information 11

1.3.3. Attempts to control 13

1.4. New uses 14

1.4.1. Continued confidence in physicians 15

1.4.2. Beyond information: life stories and testimonies 16

1.5. Conclusion 19

1.6. References 19

Chapter 2. Social and Digital Resources: The Hindered Information Practices of Cancer Patients 23

2.1. Introduction 23

2.2. Patients and information 24

2.3. Getting information from family and friends when suffering from cancer 26

2.3.1. Which relatives are likely to provide what kind of information? 26

2.3.2. Difficulty in asking people around you for information 28

2.4. Getting information on the Internet when you are sick with cancer 30

2.4.1. Widespread use for limited benefits 30

2.4.2. The health Internet: a misleading exposure 33

2.5. Conclusion 34

2.6. References 35

Chapter 3. Health at the In-between of Computing and the Information and Communication Sciences 39
Philippe MARRAST

3.1. Introduction 39

3.2. The hospital, a field to observe 41

3.3. An abductive and iterative approach for an "in-between" positioning 44

3.4. A theoretical diversity to characterize complex organizations 47

3.5. Conclusion 49

3.6. References 50

Chapter 4. Mental Health and Support for Disaster Victims. Info-communication Devices for Training Volunteer First-aid Workers in a Digital Environment 55
Silvia Rosa SIGALES RUIZ, Erik DE SOIR, Claudia Veronica MARQUEZ GONZALEZ and Michèle CARIA

4.1. Introduction 55

4.2. Studying manuals to train volunteer rescue workers in psycho-emotional support for disaster victims 56

4.3. Four analysis guides 57

4.3.1. Metadata for online documents 58

4.3.2. Pedagogical engineering of online textbooks 59

4.3.3. Mental health intervention protocols 61

4.3.4. Disaster management protocols 64

4.4. An info-communication device for online training in disaster response 66

4.5. Conclusion 68

4.6. Appendix 69

4.7. References 70

Part 2. Thinking about the Ethics of Health Research in a Digital Context 75

Chapter 5. Ethical Positions Arising from Research on Online Communities in the Health Sector 77

5.1. Introduction 77

5.2. Epistemology, deontology and ethical reflection 79

5.2.1. From the necessary scientific reflexivity to empirical and methodological scientific ethics 79

5.2.2. ICS and methodological and empirical ethics related to the study of NICTs 80

5.2.3. Empirical and methodological ethics 82

5.3. Empirical and methodological ethics in ICS and digital health 84

5.3.1. Collecting authorizations and approvals 84

5.3.2. Concealing or revealing oneself as a "researcher-observer"? 85

5.3.3. Protecting respondents 87

5.3.4. Protecting researchers in controversies and emotionally engaging research 88

5.4. Conclusion 89

5.5. References 91

Chapter 6. Action Research at La Poste to Prevent the Psychosocial Risks Associated with Digital Acculturation 93
Emilie BLANC

6.1. Introduction 93

6.2. The relevance of action research to prevent psychosocial risks 94

6.3. What method in action research prevents psychosocial risks? 97

6.4. Action research for ethical questions 98

6.5. Conclusion 100

6.6. References 101

Part 3. Thinking Approaches to Health Research in a Digital Context 103

Chapter 7. Interests and Limitations of Interdisciplinary Research in a Living Lab to Meet the Needs of Senior Citizens 105
Elizabeth BOUGEOIS and Hélène GERMAIN

7.1. Introduction 105

7.2. Reconsidering a Living Lab study: the centrality of user-experts 108

7.2.1. Senior citizens and new technologies in a controlled environment 109

7.2.2. The second study or how to reconsider research practices 110

7.3. When experts-users tell researchers where to look 112

7.3.1. Use of human, technical and digital aids by respondents 112

7.3.2. Projected uses: from voice command to "smart" robots 114

7.4. Among researchers: postures linked to disciplinary backgrounds 115

7.5. Conclusion 117

7.6. References 119

Chapter 8. For a Comprehensive Approach to the Info-communication Practices of Breast Cancer Prevention Stakeholders: A Reflection on Screening 123
Dorsaf OMRANE and Pierre MIGNOT

8.1. Introduction 123

8.2. State of the art of organized screening, a complex prevention system 125

8.2.1. Screening: device, issues and controversies 125

8.2.2. Representation of screening: between confidence and mistrust 128

8.3. Need to understand the field of screening: methodological framework 129

8.3.1. Exploratory approach: quantitative reflection on screening 130

8.3.2. Ethnographic survey and qualitative content analysis: a comprehensive approach to screening 132

8.4. Conclusion 135

8.5. References 136

Chapter 9. Health Research on Immunization after 2016: The Need for a Plural Methodological Approach 141
Mylène COSTES and Audrey ARNOULT

9.1. Introduction 141

9.2. An exploratory study that raises methodological questions 143

9.2.1. Construction of research questions 143

9.2.2. A test methodology with limitations 144

9.2.3. Reflexivity on the concept of "axiological neutrality" 145

9.2.4. Unexpected results that lead to (re)thinking the method deployed 145

9.3. The use of lexicometry for the analysis of interviews on vaccine hesitation and opposition 148

9.3.1. Expanded field and themes 148

9.3.2. The potential contributions of the Iramuteq software to health research 150

9.4. Conclusion 152

9.5. References 153

Chapter 10. Qualitative Research in Health, in Sign Language: Multimodality and Interculturality of Analytical Work 159

10.1. Introduction 159

10.2. Topicality of methodological issues in SL research 160

10.2.1. Context and issues in SL health research 160

10.2.2. The communication dimension at the heart of research activities 161

10.3. The communication challenges of interviews in SL 162

10.3.1. Challenges of a fine work on what is said in SL 163

10.3.2. Domesticating the camera, keeping your hand on the format of exchanges 165

10.3.3. Interacting in SL: a repositioning of bodies and objects 166

10.4. Exposing SL speech analysis in publications 167

10.4.1. Sharing benchmarks, a professional vision 167

10.4.2. Test of an example 168

10.4.3. The communicational anchoring of reading 172

10.5. Conclusion 173

10.6. References 174

Postface 177


List of Authors 181

Index 183
Laurent Morillon is a Professor at the University of the French West Indies. He is a researcher at the LC2S (UMR 8053) laboratory and leads a group on organizational communication ( His work focuses on the epistemological practices and models of actors in an organization context.

L. Morillon, University of the French West Indies