John Wiley & Sons Management of Neuromuscular Disorders in Children Cover Bietet Praxisleitlinien für Diagnose und Management der häufigsten neuromuskulären Störungen. - Erlä.. Product #: 978-1-911612-08-7 Regular price: $80.28 $80.28 Auf Lager

Management of Neuromuscular Disorders in Children

Deconinck, Nicolas / Goemans, Nathalie

Clinics in Developmental Medicine

Cover

1. Auflage August 2019
468 Seiten, Hardcover
Praktikerbuch

ISBN: 978-1-911612-08-7
John Wiley & Sons

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Bietet Praxisleitlinien für Diagnose und Management der häufigsten neuromuskulären Störungen.
- Erläutert die Ansätze bei den wichtigsten Körperfunktionen, die von neuromuskulären Erkrankungen betroffen sind.
- Vereint die Stellungnahmen und Leitlinien der Experten des Fachgebiets.
- Präsentiert auch die jüngsten therapeutischen Fortschritte bei Duchenne-Muskeldystrophie und spinaler Muskeldystrophie.

Foreword

Rudolf Korinthenberg


Preface

Nicolas Deconinck and Nathalie Goemans


Section A: Introduction

1. Parent Perspectives on Neuromuscular Disorders: From Diagnosis, to Parenting and Living With, to Advance Care Planning and Preparing for Death

Anne Rutkowski, Stacy Cossette, Anne Lennox and Ann Schrooten


2. The Importance of Setting up Guidelines for Neuromuscular Disorders

Thomas Sejersen


3. A Multidisciplinary Approach and Management as Best Care Model in Neuromuscular Disorders

Nathalie Goemans


Section B: Assessment of a Child with a Neuromuscular Disorder: The Cornerstone for Management

4. Clinical Evaluation and Diagnostic Approach

Nicolas Deconinck, Sandra Coppens and Gauthier Remiche


5. The Importance of Evaluating Function in Neuromuscular Disorders

Anna G Mayhew


Section C: Overview of the Most Frequent Neuromuscular Conditions in Children and Disease Specific Medical Management

6. Spinal Muscular Atrophy and Other Motor Neuron Diseases

Wendy K M Liew, Banu Sundar and Basil T Darras


7. Inherited Neuropathies

Nicolas Deconinck and Lionel Paternoster


8. Acquired Neuropathies

Nicolas Deconinck


9. Disorders of the Neuromuscular Junction: Inherited Myasthenic Syndromes and Juvenile Myasthenia Gravis

Nicolas Deconinck


10. Duchenne and Becker Muscular Dytrophies

Nathalie Goemans


11. Limb Girdle Muscular Dystrophies

Nathalie Goemans


12. Congenital Muscular Dystrophies

Nathalie Goemans


13. Facioscapulohumeral Muscular Dystrophy

Nicolas Deconinck


14. Congenital Myopathies

Sandra Coppens


15. Myotonic Dystrophies

Liesbeth De Waele


16. Pompe Disease

Boglarka Bansagi and Peter Witters


17. Mitochondrial Disorders

Rudy van Coster


18. Channelopathies

Nicolas Deconinck


19. Inflammatory Myopathies

Nicolas Deconinck and Laurence Goffin


Section D: Physical Rehabilitation and Orthopaedic Management

20. Lifelong Physiotherapy: Staying Active

Imelda de Groot


21. Management of of Contractures: Stretching, Positioning and Splinting

Tina Duong and Kristy Rose


22. Occupational Therapy and Robotics

Imelda de Groot


23. Orthopedic Complications in Neuromuscular Disorders

Maarten Van Nuffel and Pierre Moens


24. Neuromuscular Scoliosis

Pierre Moens


Section E: Respiratory Management

25. Assessment and Management of Respiratory Function in Children with Neuromuscular Disorders

Oscar Mayer, Hemant Sawnani and Michel Toussaint


Section F: Feeding and Gastrointestinal Management

26. Gatro-intestinal Complications and Nutrition

Hasan Özen and Haluk Topalogou


Section G: Cardiac Management

27. Cardiac Management in Children with Neuromuscular Disorders

Karim Wahbi


Section H: Psychosocial Aspects

28. Cognitive, Behavioral and Psychosocial Aspects of Growing Up with a Neuromuscular Disease

Sam Geuens


29. Transition to Adulthood

Ros Quinlivan


30. Sexual Health Needs in Patients with Neuromuscular Disorders

Laurent Servais